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Welcome to the story of
Tess & the Terrific Trio
(with Sebastian and Dad in tow)

The triplets, Jasper, Sela and Carys, were born in Hong Kong on February 23, 2004 at 26 weeks and two days gestation. Jasper and Sela spent 87 days under the highly attentive and professional care of the Queen Mary Hospital Neo-Natal Intensive Care Unit (NICU). They were discharged on Wednesday, May 19, 2004. Carys spent 97 days in the NICU, four days on home leave, and was officially discharged on Wednesday, June 2, 2004. 
Thank you for visiting this site and following the Terrific Trio's fight for survival.


Birth to Day 45 in the NICU


Main Page
Maureen's Visit July 04
1st Month @ Home
Birth to Day 45 in NICU
Day 46 to Day 97 in NICU

 
 
We have 30 second movies of Carys, Sela and Jasper (4 MB files - BE PATIENT) - see below for details! We have received hundreds of wonderful e-mails from around the world but there is no way we could possibly post them all here… so please take a moment to post a message via the link below. Thank you for all your prayers and messages and praise for the miracles we've seen thus far.


CAUTION: PLEASE BE FOREWARNED
The pictures on this page are of three premature babies born at 26 weeks and 2 days gestation in Hong Kong.
Some people may find these pictures disturbing.


SPECIAL REQUEST: PLEASE PRAY FOR LUKE
A preemie baby previously mentioned below, Luke's parents returned to the NICU one day this week to discover Luke had a FRACTURED FEMUR! Please pray for a speedy, uneventful recovery for Luke, no long term repercussions and that the individuals responsible come forward. Luke's parents are in a very difficult situation since, like us, they are probably only halfway through their NICU journey.

I am sensitive to the fact that most of the time I am being very centric and selfish, thinking we are the only ones with a battle. The outpouring of support from all over the world is overwhelmng. A business colleague of mine, Uday, sent me an e-mail on Day 2 from Bangalore, India. He had gone to the Infant Jesus Shrine Church on his lunch hour and lit six candles - one for each member of our family. Uday, for you and all the others around the world praying for us, thank you from every corner of our hearts. We are grateful of the huge community of friends and family around the world who provide support. In the first 24 hours of this page being posted we received over 1000 hits. ("That was my mom," Tess said.)But we know that all around the world babies are being born premature with various odds of survival.  Please know we're praying for all babies everywhere, including... Jack & Luke who lost their sister Erin in her first 36 hours. Pray that Scott's wife can fight off pre-term labour at least for another nine weeks. Pray for John & Lisa's babies who were born premature at 28 weeks 2 days. Pray for the Chew Family, whose triplets were born at 28 weeks and 2 days on March 4 and are tracking parallel to the Terrific Trio. Pray for Carrie and her triplets, born March 6 @ 30.4 weeks and fighting various issues. Pray for Rory, just a wee boy a few months old with complications from heart surgery... and for Tommy Joe who has acute interstitial pneumonia. MEANWHILE, Caeleigh went home after almost six months in the NICU.

Each day another day. There but for the grace of God we go...

CLICK ON THE IMAGES TO ENLARGE
Please do not remove images from this site, for posting on other sites or for public use,
without our permission. Friends and family may remove images for personal use.

Jasper
Sela
Carys
Day 45: Apr 7

 Arrived at the NICU today and by Sela's isolette there was what seemed to be a medium sized red hot water bottle. How cute, I thought, they are keeping her cozy. Hardly. Sela's hemoglobin levels had dropped and she needed a transfusion. Blood is so very dark red. We have no more information than that. The doctors do not seem overly concerned, which is a good sign. Much to my delight, Jasper was still sporting his nasal canula!!! 

Perspective: Jasper's head is still
about the size of a tangerine.

I was thrilled, but not as happy as he was, I imagine. Jasper is still pale, but his hemoglobin within normal ranges, apparently. I changed his messy nappy today and apparently my technique isn't as good as the nurses, because halfway through as I was wiping his small but slippery bottom Jasper burst into high pitched wails. That's gratitude for you. Jasper and Sela have had their feedings increased, they are now receiving 240 mls a day. After a solid 24 hours off the CPAP, Jasper’s head is less resembling a peanut shell and the indentations slowly filling in. It will be several weeks before Jasper’s head and nostrils regain their natural shape.  Carys is definitely enjoying the protective environment provided by the isolette incubator. Her O2 levels were between 30 - 35 today and she was stable. While her siblings are learning to function on the canulas, they occasionally have de-saturations. This is when the babies stop breathing (basically sleep apnea) and their blood oxygen drops. Carys fortunately only experiences these de-sat problems when she has hiccups. Her feeding is also increased, to 180ml per day. Looking at her pictures you can see she is still struggling, and we hope to meet with a doctor tomorrow to find out just when we will learn more about the fungus. The fact her vitals are good is a positive sign, and we cling to that. 
Day 44: Apr 6

Jasper graduates to nasal canula!

From Tess: In the excitement of holding Sela, we forgot to mention another Monday incident... Sela sucking her thumb! Her pacifier was being sterilized, and somehow she managed to pop her thumb into her mouth. At the nurses' shriek of horror I none too gently supervised the removal of the thumb only to notice a few minutes later Sela sucking on her ring finger. 

Tuesday was a huge day for the J-Man... Jasper was put on a nasal canula! He is enjoying the extra freedom the canula provides and catching up on sleep, too. Not sure how long he will be able to stay on the canula. 

Unlike the CPAP, which forces air into the nose, the canula only provides a regular flow of oxygen enriched air into the nose. This requires the babies to be motivated to inhale in order to receive. 

Breathing is therefore harder work, and like Sela, Jasper may need to take a rest after a few days on the canula. He is paler than usual today, although his hemoglobin levels are acceptable.

Charles and Tess have been praying specifically for Carys' Oxygen levels to be lowered, for days they hovered around 45-50, and then the day after we began praying for the level to drop, it was at 40, and even, 35. For the past two days the level has been between 30-35. What an answer to prayer! 

Like every Tuesday, it was weigh in day! The grams piled on!!! Jasper went from 2lbs15 oz to 3lbs1oz, Sela from 2lbs13oz to 3lbs, and Carys from 2lbs3 to 2lbs5 oz. Amen!!!

Day 43: Apr 5

Yesterday Jasper had a "diva" moment... one minute he was flailing about in his incubator prior to a nappy change, the next his soother
jettisoned through his incubator porthole, landing on the floor. This was one of those cases where the five second rule didn't apply and the soother was sent for washing. Whatever happened to our laid back surfer dude? 

So far the Boston Red Sox Greater China Under Two Team have expressed the most interest. 

Jasper has been restless and not far off from throwing his CPAP out the porthole, too... we were told today that if all goes well with Jasper on 21 per cent oxygen tonight, then tomorrow he will be put on a nasal canula.

We are happy to report that Carys' O2 reliance dropped down a bit over the weekend and Monday. She just keeps fighting, this little one.
Unfortunately, all three babies were running fevers Monday morning of about 100 F. Sebastian had a nasty cough and fever last week. We wondered if we had passed on that bug to the trips, even though we ourselves had not had it. 

The NICU nurses had told us at the time that
as long as we remained symptom free to continue visiting. At the end of the day the final verdict: temps returned to normal and we wait to see
what tomorrow brings.

Meanwhile, the highlight of the day/week... WE BOTH GOT TO HOLD SELA!! None of the babies are meant to be removed from their isolettes, so how did this miracle happen? It was a reminder that God's miracles aren't always glamorous. Well, to stimulate the intestines each baby receives a
glycerine suppository and tummy massage. Following hers, Sela had a nappy change that came a little too soon. Having just wiped Sela clean, Tess lifted up the babe's legs to slide a fresh nappy underneath... 

just as part two of the bowel movement exploded out of the tiny but powerful bottom.  At that exact moment Sela explosively decorated the inside of her incubator. Tess and the nurse burst out laughing, as they looked at the freshly decorated incubator, and the nurse declared a new incubator was needed. The first incubator was rejected because it had not been pre-warmed. We lurked nearby, and right as Sela was being transferred, we asked if we could hold her for a few minutes, or seconds even. The nurses agreed. Charles held Sela for the first time. The look on his face when he held the tiny bundle was heart-wrenching...thank goodness for auto-focus cameras. Then it was mumma's turn... while Sela was facing upwards when she was handed to Tess, she started rooting and managed to wriggle herself 90 degrees until her nose was touching Tess' shirt! It was an amazing unexpected gift. 

Day 42: Apr 4

Jasper throws his soother out the incubator porthole.


Jasper prepares to rip off his CPAP.
Sela sleeps.
Carys holds her dad's index finger.
Day 41: Apr 3

In addition to the weekly weigh-in, we have a special treat for everyone today... the sounds of our babies crying! (Unfortunately the quality is
not that great, but you'll still get the idea.) We love these sounds, even if it might mean the babies are wound-up and angry, because it shows us they have the energy and lungs to express  themselves. 

Jasper's sound was recorded as a nurse was pealing away one of the sticky monitor pads. Normally, it's best to rip these things off quickly, but with all the wiring, tubing and feeding stuff attached to Jasper the pad had to be removed more carefully then you or I would tear away a band aid. Therefore, Jasper was not a happy camper and he let us know. Sela's recording is a shorter one, taken when something was bothering her. 

Carys' recording was taken when she was wound-up about something. A soother and a few pats settled her down.

CLICK HERE for Jasper's cry.
CLICK HERE for Sela's cry.
CLICK HERE for Carys' cry.

And now for today's weigh-in. All three gained weight with Sela gaining the most. Jasper came in just shy of 3 lbs. Carys reached Jasper's birth weight.

Today's Weights:

Jasper last weigh in was 1,280 grams (2lbs 13oz) now is 1,335 grams (2 lbs 15 oz)
Sela last weigh in was 1,220 grams (2lbs 11oz) now is 1,280 grams (2 lbs 13oz)
Carys last weigh in was 940 grams (2lbs 1oz) now is 1000 grams (2 lbs 3oz)

You may notice the babies have a studious look on their faces in some of our pictures, such as today's picture of Jasper.  We have on occasion 

 caught them studying the professional black and white photos or Lamaze items we have draped around the incubators. Even the nurses have commented on these stunning pictures, which you can see in the background of the web site pictures. They were taken by Alice Bache. If you live in Hong Kong and want to have Alice photograph your family we can put you in contact with her.

Medical update: Sela is doing well, and in about two to three weeks two things will likely happen. First, she will move to the NICU step down unit and second, we'll be able to bring in clothes for her to wear. 

Jasper is also progressing, although had a setback when he dropped back to the regular CPAP. We also noticed Jasper was very pale today. We asked the nurses about this who agreed, and said the doctors had even run some tests that came up negative for anything. Other than an e-coli scare a few days ago, Jasper seems to be progressing, but needs to work on his breathing. We are a little surprised he has fallen so far behind Sela. With Sela's obvious progress since stabilizing on the nasal canula, we are even more anxious for the others to meet that milestone. 

Carys continues to fight. Doctors have not given her a clean bill of health on the aspergillosis front. The fungus is still a threat. Carys has made progress with weaning down her oxygen but still has a long road ahead of her.

Tess and I found ourselves very tired the last few days. While we're still on the edge of the aspergillosis nightmare, overall things have gone fairly smoothly the last week.  Therefore, we figure the fatigue is probably the stress catching up with us.

Day 40: Apr 2

Tess here... Last night, just as we were dozing off, we realised we had one day left to register the babies with the government. On went the lights and the middle name debate began....and we fell asleep. In the morning we tried again, but couldn't decide on anything as the background noise of Sebastian's sesame street DVD made us focus on names like "elmo". We'll try again tonight.

Today was a tough day in the NICU. 

The latest eye medication makes it appear that the babies are crying. (Did we tell you they all have conjunctivitis?) Lights shining down on the isolettes enhances that image. My heart was heavy looking down at the "wee three" and them looking at me with tears apparently forming at the corners of their eyes. We spoke with doctors and the e-coli in Jasper's eye and sputum does not seem to have developed further, a HUGE answer to prayer. 

Sela is doing well. I changed her nappy tonight. Small girl, big mess. She does like having a fresh bottom and was quite content afterwards. Don't be deceived by the much more baby-like pictures of Sela - she is still extraordinarily tiny!

No updates on Carys' fungus. Today Carys' occupational therapist said that while Carys is very willing to suck, since her lungs have little 

breathing capacity, Carys will have a long time before feeding by mouth. This is because Carys will have a difficult time holding her breath. 

Day 39: Apr 1
Everything status quo... go, Jasper, go!

We're hoping he busts through 3 lbs on Saturday.

Sorry, too tired to write more.

Day 38: Mar 31

Sela back on nasal canula!

Sela is back on the nasal canula and let me tell you... Sela is one happy camper. Tonight she was wide awake, looking around, smiling, wiggling, the works! During this evening's visit Sela filled her nappy to the top, and the nurse allowed Tess to change it unsupervised. (Big deal folks!) Afterwards Dad felt Sela was "not quite positioned properly" and shifted her about in the isolette. Tess watched and commented later, "That probably qualifies as your first hold!" 

Jasper, Sela, Carys on March 21
Click image for actual size.


Meanwhile, Jasper's O2 requirement on CPAP was at an all time low. Carys managed to sustain 40% O2 mix for a while today, too. So generally good news across the board. Carys is not out of the woods yet but she is definitely a fighter and staying in the battle.

On March 21, the day before Maureen left Hong Kong, the Terrific Trio had their first (well, second if you count birth) Arts & Crafts lesson with a foot painting session. Due to the fungus scare, this required three separate non-toxic water based ink pads so that the trips didn't transmit germs via the ink pad. 

Yvonne (one of the NICU nurses) meticulously imprinted the trips' feet. A snap of the outcome is provided here. (Jasper, Sela, Carys from left to right.) Click on the image for actual size. 

We are encouraged by the progress the trips have made the last several days, but terrified that setbacks lurk around the corner. Thank you everyone for your messages of support and prayer. Praise for the trips' progress thus far. And yes, it's true we're exhausted. 

We also want to reiterate how much we enjoy the NICU staff, especially the nurses. Their professionalism and bed side manner is beyond reproach and each day we look forward to seeing who is in the NICU almost as much as we look forward to seeing the Terrific Trio.

Day 37: Mar 30

Triplets become piglets @ Tuesday weigh-in!

Tess here again - Charles is making dinner. (Sirloin steak & baked potato!)

Madonna has a personal trainer for her kids, ours have an occupational therapist for sucking therapy. Today right towards the end of my time with Carys, a lady came in and opened Jasper's isolette. She remained there while I spent my 30 minutes with Sela. I rotated over to Jasper. She smiled at me and introduced herself as "Jasper's occupational therapist (OT)". 

Twice weekly she comes in, and her main mission right now is to assist Jasper in learning to suck. She had a mini soother. As she stroked  his cheek, she would pop the soother in. 

Sure enough, his little mouth would work away for a few sucks, and then he would spit the soother out.  The OT explained how she is instructing the nursing staff to ensure that Jasper has a soother in his mouth during feeding, so he can associate sucking with a full tummy. Sela has an OT, and as soon as Carys grows a little, she will be assigned an OT, too. It was extremely interesting and I would have stayed longer, but due to the nurses rotational schedule, I had to leave. 

Speaking of weights....Tuesday was weigh in day!!!  I hope the trips are enjoying this...this is the one time in their lives when they are trying to gain weight!!!

Today's Weights:

Jasper last weigh in was 1,190 grams (2lbs10oz) now is 1,280 grams (2 lbs.13oz)
Sela last weigh in was 1,165 grams (2lbs.9oz) now is 1,220 grams (2 lbs.11oz)
Carys last weigh in was 890 grams (1lbs.15oz) now is 940 grams (2 lbs.1oz)

This is great progress!
Update on Carys: she is just as ill as she ever was. We are waiting for a Cat Scan and further X-Rays to indicate if the fungus has entered her thorax and if it has grown in her lungs. When we don't hear any bad news for a couple of days, we get lulled into a false sense of security. We try to remember that "nothing new to report" means they don't know any more, but we do build our hopes up. However, except for an unusually high heartbeat, her vital signs are good, AND SHE IS GAINING WEIGHT. We are being realistic, but continue to hope our prayers will be answered and Carys will live!

Poor Sela is restless. Docile until something rankles her, Sela is definitely becoming agitated with the CPAP and its restrictions. 

Although not crying, she was moving around, trying to get comfortable during both my visitations today, and when Charles was with her. Little sweetie.

Here is a wonderful verse passed on to me by my friend Cora: Do not be anxious about anything, but everything, in prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding will guard your hearts and minds in Christ Jesus.  (Philippians 4:6-7) We're trying and it does. God's peace is the only thing that has kept us sane over the past five weeks.

Day 36: Mar 29 Jasper, unable to maintain the pace of a Step  Down CPAP, drops back to regular CPAP.  Everything else status quo. 
Day 35: Mar 28

Sela has a restless day. 

Tess here again - As it is prayers, the Great Physician and the earthly ones who have saved these babies lives, we feel that you, their "e-family" might want to know a bit more about them.

Let's start with their names. 

Jasper - (English) precious rock/treasure holder.

Sela - This Hebrew name has three definitions: Selina was the Goddess of the Moon, Sela is a shortened form of Selina. Sela also means precious rock, and pause and reflect. SEE-la.

Carys - This Welsh name means beloved or graceful. KARE-iss.

The babies have very different personalities, or possibly circumstances are dictating their personalities. 

The nurses often comment on Jasper's smily personality,and we agree. He is a pretty easygoing fellow, happiest when his tummy is full. When he sleeps on his side, he places one hand on either side of his face. When sleeping on his back, his arms tend to be stretched straight over his head, or at his side.

Sela is also a smily baby, but is much more vocal (Irish???) when "things" (sleeping positions, diapers, empty tummy) don't meet her requirements. She has been known to smack at approaching syringes. But her cries and tempers are easily patted away. 

Carys has been so busy fighting fungi that she hasn't had time to let the frivolous side of her personality let loose. But we know it is there...

this is the same girl who at less than two days old was kicking off her diaper in order to avoid tan lines while under the biliruben lights.

As far as looks go, Jasper appears to have blonde hair, while both girls have dark hair, Carys having more, Sela's being lighter. All eyes are seemingly changing colour.

A common refrain when we told friends we were having triplets was: "At least one has to look like Tess!", a reference to the fact that Sebastian is a carbon copy of his father, and his Grandfather Caldwell for that matter. It's difficult to tell with all the bandages and tubes, but Jasper definitely and most likely Sela have the Caldwell jaw, face, thin mouth...and hopefully Charles' brains and sweetness as well. 

A comment about the incubator isolettes: as their name suggests, they are curiously isolating. We both feel less connected to the babies now, as it is more difficult to make eye contact and holding their hands is tough depending on the angle. 

Moreover,  we have to move away when the nurses need access to the incubators. We feel like our presence is less important than it was to the babies when they were in "open air beds" covered with Saran Wrap.

After one month of living the NICU life, it seems a fuzzy dream. I have no idea where the days have gone, or why some days I feel a surfeit of emotions: guilt, sorrow, hope...only to feel emotionally bereft the next day. I sometimes feel that one morning I will wake up, and the huge bump on my stomach will be back, and these past five weeks will have been a dream. Other days I feel I will be sitting beside one of three isolettes in the NICU for the rest of my days. God and your prayers have sustained us. I wish there was a more adequate way to thank you all. 

The triplets continue to fight the good fight, leaving me in awe of their desire to experience life on earth, and determined to do more with my own. 

Day 34: Mar 27

Sela fails to maintain canula, drops back to CPAP. 
Sela, unable to maintain decent saturation levels on Friday night, shifts off the nasal canula back to a Step Down CPAP. Meanwhile, Jasper graduates from regular CPAP to Step Down CPAP.

Tess here to set the record straight: 

For weeks we have received love and support from caring people around the world, many of whom congratulate us on the website. Truth be told, Charles deserves all the credit. I'm far too busy creating a relationship with my Medela Pump N Style Breast Pump. 

The website is terrific and Charles' daily updates are written as he is feeling at the moment. He shows a lot of vulnerability, honesty and intelligence, for making sense of those medical terms!

Now for the Saturday weigh-in: all three babies gained this week. Carys gained 20 grams and is now 1 lb 14 oz, Sela packed on a whopping 55 grams and is 2lbs 9oz, while Jasper gained 40 grams coming in at 2lbs 10oz.

Day 33: Mar 26

Sela graduates to nasal canula!

Everything is blurring together now as we race down the autobahn. The birth seems like yesterday but was over a month ago. Sometimes the birth seems like a year ago. Thursday evening, after Pastor May Tsui from Union Church visited the babies, Charles crashed the last hour of a Thunderers' meeting where he enjoyed a glass of Port, or two... doubtfully three. 

However, letting his relaxation guard down even for a few hours, a tidal wave of tension release washed over him, requiring even more energy to get the machine back up to speed the next day.  Meanwhile on Friday, Sela accelerated further into the fast lane after graduating to a nasal canula... the last racetrack before her lungs reach out to find their independence in this world. All going well, that will be four to six weeks away. Jasper, tailing a half lap behind Sela, rested quietly in his incubator. Tomorrow he'll shift to a "step-down" CPAP, and all going well, a few days later Jasper will pull into the straight away that will sling shot him to a nasal canula. Jasper is determined to catch his sister, but little does he realize she's firmly planted herself into the seat of a Porsche Cayenne and preparing for all terrain.  As the engines beat, mechanics report that all three babies have "closed" PDA's. Praise for that. But Sela has a problem with conjunctivitis in her windshield, and possibly Jasper, too.  Elsewhere, there is Carys, journeying the road less traveled. Earlier on Friday, dashboard instrumentation indicated Carys could be overheating. The mechanic warned, "This could be the start of either the final fungus infection or another bacterial infection." Within a few hours the engine ceased overheating, but Carys still has major hurdles to overcome. First, there is the threatening fungal infection. Second, Carys' lungs are gas guzzlers, consistently sucking back 50%+ oxygen enriched air via CPAP and resisting weaning. Carys struggles to keep up with the pace car, which on a few occasions has had to stop at the side of the road. 

CARYS MOVIE (4 MB): Carys
stretches to get comfortable. 


Determined to stay in the race, Carys perseveres, delicately navigating the NICU highway, while her cylinders hum to a different drum.
Day 32: Mar 25

Situation status quo. Carys shifted to enclosed incubator to be less disturbed. Mozart music discontinued for Carys (except when she is awake) because doctors claim Carys is "fragile." Pastor May Tsui (right) from Union Church visited the Terrific Trio tonight. 

Day 31: Mar 24

Newsflash: Carys' blood culture returns positive for aspergillosis. Sela and Jasper graduate from ICU isolettes to enclosed incubators. Tess holds Sela for the first time (for 40 minutes.)

The rollercoaster continues. Today, Carys' blood test returned positive for aspergillosis. However, at the end of the day after conducting an x-ray that showed "the spot" had advanced no further since the March 19th x-ray, and since the doctors felt that Carys' clinical condition was stable, they discontinued the aspergillosis fighting drug. Our
hearts stopped. 
We didn't know if this was good news or bad. We questioned the doctors on their decision.  The answer helped a little. The doctors are puzzled by Carys' clinical condition. Based on test results - positive blood culture, spot on her lung - Carys should be getting worse but she isn't. Therefore, the doctors felt perhaps the aspergillosis was not advanced enough to be serious - or perhaps not a "deep tissue" infection.  Therefore, considering the toxicity of the drugs to fight aspergillosis, they'd rather stop for a few days to see how her other symptoms develop. If the fungus looked as if it were advancing, doctors would resume the drug. If on the other hand Carys held her own, they'd hold off on the drug. Satisfied we'd pushed back enough to get our questions answered, we trusted their decision, but it still made us nervous. 
Day 30: Mar 23
As the Terrific Trio celebrate their first month's birthday, here is the latest update. All three passed their ROP eye exams. They will have another exam in two weeks. Jasper's PDA re-appeared for the second time. Doctors claim it is a very small murmur. Not sure what the treatment will be but we expect not too involved. Sela's PDA is partly resolved - the heart murmur is less pronounced.

All three had brain ultra-sounds to watch for and/or monitor for IVH (Intraventricular Hemorrhage). Sela's (Grade 1 Brain Bleed) and Carys' (Grade 2 Brain Bleed) are the same.

Praise for them not advancing! Unfortunately, Jasper now has a Grade 1Brain Bleed. (Grade 4 is the worst.) Carys had an ultrasound to see if
the fungus had spread to her liver (I guess that's another way for them to determine if she does have the fungus after all) and the ultrasound
was negative. Still no word on carys blood culture that can shed more light on the presence of aspergillosis.

All three are gaining weight and doctors have increased Jasper's food intake quite a bit. The babes are now weighing in at 1.14 kilos
(Jasper), 1.11 kilos (Sela) and 0.87 kilos (Carys).

Our very devoted helpers, Mila and Lita, baked two cheese cakes in honour of the trips one month birthday. 

One cake was for us and one for
the NICU team. Tess delivered the NICU cake at the end of the day and when Tess and I returned from the hospital the four of us enjoyed our tasty treat. A few thanks that are long overdue: thanks to the Juniper Networks HR Team for sending over 400 preemie dialers last week. The Terrific Trio love them and look very, very cute! Thanks to Tania Ellery and EMI Music Asia, for sending a wide variety of Mozart tapes for the Terrific Trio. Once the Terrific Trio recover, the music will be donated to the QMH NICU for future preemie patients. And finally, thanks to the Linked In Team from California for sending flowers two weeks ago - a wonderful surprise and totally unexpected. Once the Terrific Trio have e-mail, they'll start their networks! Judging by the messages we've 
Carys breathes best on her front

received from all around the world, of people praying and cheering for the triplets, their networks are quite extensive, too. 
Day 29: Mar 22 No change. Even more tired! Tomorrow is a big day: brain ultrasounds, bi-weekly  weigh-in, results from Carys' fungus blood culture should come in, update on Sela's PDA  treatment and of course it is the Terrific Trio's one month birthday.
Day 28: Mar 21
We're still living this nightmare with Carys' lung fungus, but having gone through that Friday (and nothing we can do for now) we sort of switched into just "being with the trips mode" and stopped asking questions for a few days. Having said that, here is some positive news from the weekend. 
That said, Saturday and Sunday were magical days... the top moments with the trips thus far and probably fall into the top moments of my life. 

First, Jasper is IV Free a positive milestone to keep himself infection free. I was there when they pulled it and I thought it had collapsed. I asked the nurse if we had to put in another IV and she said, "no, all done." We thought he had it for another 2 weeks until the last PDA treatment but chock that up to a simple Cantonese-English miscommunication. The lil rascal was not happy with the pain of the pull, and screamed at the top of his lungs... well, let me tell you... HOW I LOVE THAT SOUND after all paranoia of his respiration problems - you hear what I'm sayin'? 


I held the gauze against his wrist, then the nurse placed a band-aid overtop. Jasper and I settled down together staring at each other, me consoling/congratulating him on being IV free and having no more PDA. Jasper stared back, quizzically looking at me, (Who IS this masked man?) and we had the most precious bonding session. 

Next was Sela, who had a bad bout of the hiccups after I gave her the "peppermint treat." We've discovered that Sela LOVES having her hands held. If you pull away from holding her hand, she sort of reaches out as if trying to find the object that just slipped away. 


So there Sela and I were, holding hands on a sunny Saturday afternoon, where through the window sprawled the South China Sea ablaze with sparkling sunlight. 
Finally, Carys, who slept most of my visits. Poor little Carys has such a fight on her hands. Just before leaving Saturday night I wake her up for "dessert" and she must have just been in "The Mood" for the peppermint flavour. Good to the last drop, Carys savoured every moment that the cotton swab was in her mouth, sucking away like a fiend. I said to her, "Just wait until you get to eat real food... you'll love it!

Last night as we left I taped some gorgeous, professional B & W photos of Tess and Sebastian to the outside of her isolette right at eye level. All Carys has to do is open her eyes to see the pics. (B&W - theory being - babies recognize those images first.) 

This morning when we went into the NICU the nurses gave us a little update. Carys' O2 dependency was down a bit (yeah) and the nurse said, "Very strange, Carys' eyes are open a lot more now." I didn't think much of this until I SAW HER, as crazy as this sounds, open her eyes and focus on the pictures. Then it clicked. Monday I'll print the same pics for Jasper and Sela. 
The weekend was full of magical moments like these... truly, truly special. 
 

Day 27: Mar 20

Newsflash: Jasper is IV free!

A status quo day as Carys continued on the aspergillosis fighting drug. Generally a restful day for the triplets other than a bad bout of hiccups for Sela midday. 

Nurses removed Jasper's IV, painful for him at the time, but he sure was startled to discover he could move his arm and hand so freely! Oh yes, and Jasper has a fungus... nappy rash.

As a precaution, nurses slathered his nether regions with a powerful ointment to banish the rash. Jasper had no objections. 

It finally happened – today the agent picked up the BMW… it’s gone. The car was quite dirty from sitting dormant in the garage the last few weeks. Charles got up early and meticulously washed it in preparation for the exchange. The gas tank was near empty, so he took it for a short drive to put enough gas in the tank for the agent to make it back to Sai Kung. Mid afternoon the agent came to Pokfulam, we handled the paperwork, took a last minute pic, and the car was gone in a flash. Later Tess asked Charles, with a slight touch of sarcasm, “Did you say good-bye to your car?” “Yes, I did,” Charles sobbed.  “Oh you’re kidding me, you are so ridiculous,” Tess responded, her tone shifting to aloof. “But Tess, that was a great car… it was reliable, fun, we drove everywhere and had so many great memories for more than two years,” Charles appealed. Tess was silent, nodding her head in violent agreement as the tears welled and the two of us tried to pull it together. This is the wrong time for emotional tests, even for a simple thing like selling a car. 
Friday, March 19 was a few steps beyond surreal. All day, and especially this evening after discussing Carys at length with a doctor, I harkened back to a wet, dark ride down a lonely unlit highway. Somewhere down that highway The Doors slipped into my mind's sound waves. The following should be sung to the tune of "Riders on the Storm."
There's a killer on the Ward
He's got us praying to The Lord
His name is aspergillosis
He's in the lungs of little Carys
X-rays told the nasty tale
That Carys' life just might de-rail
There's a killer on the Ward
There's no real diagnosis
Other than the scary prognosis
How will we ever know?
Post mortem tests will show
Doc, how do we fight this bug?
You gotta give the babe The Drug!
There's a killer on The Ward 
There's a killer on the lung
If we catch him he’ll be hung
Please pray real hard
That this bug is not at large
If we give this fungi time
Carys life might cross the line
There's a killer on the lung
Day 26: Mar 19
Tough day. Tess spent almost all of it at the hospital. This evening we had a long visit with a doctor. They specifically requested we both meet them, even inviting us to sit down. “Uh oh,” as Sebastian would say. Fortunately, while we like all the doctors at the QMH NICU, we especially like the one who spoke with us this evening. Here’s what we’re dealing with…

The doctor showed us lung x-rays taken on March 17 and March 19. We can clearly see “the spot” including its growth in two days. The spot could be another bacterial infection, lung trauma (odd since Carys was extubated therefore lung trauma should have reduced) or the aspergillus fungus. The doctors, while not 100% certain, are quite concerned we are dealing with the fungus. 

Prior to meeting with us, a boatload of doctors, including obstetricians, microbiologists, virologists, pediatricians and radiologists, met to discuss Carys. They came to the consensus that the drug protocol to combat aspergillosis should commence immediately. “There is a very small window to start treatment,” the doctor explained.

I asked if we would ever be certain Carys has aspergillosis. The possible answers included, first, yes via a positive culture but aspergillosis is tricky since it can evade culture tests. A negative test does not rule out aspergillosis. Second, aspirate from the lung that could only be obtained through a lung biopsy, too risky a procedure for Carys right now. Third, a CAT scan of the lungs can sometimes confirm aspergillosis. This would need to be done one to two weeks into the illness. “And to be totally honest,” the doctor said delicately, “most cases of aspergillosis are diagnosed post mortem.” 

The doctor also explained they could manage the drug protocol side effects. Doctors plan to administer the drugs for one to two weeks and then re-assess their diagnosis. 

If the spot seems to have receded, or reveals itself as something else, then they will discontinue treatment. If the spot remains they will continue treatment for another four weeks in a more intrusive manner. The cost of the drug is so high the hospital requires it to be purchased and paid for prior to treatment. So, while I spent more time with the doctor discussing the triplets, Tess headed off to the hospital pharmacy to purchase a standard four-day subscription for US$ 600. 

The possible outcomes:

(1) False alarm and within one to two weeks everything returns to normal. 
(2) Carys has aspergillosis and survives. She’ll be dealing with chronic lung disease, hopefully overcoming it by the time she is a toddler.
(3) Carys loses to aspergillosis, in which case I asked the doctor how quickly death would come. “We will make sure that in the advanced stages Carys is not in any pain and minimal if any discomfort. There is no telling how long Carys would last. With aspergillosis you can see both a rapid and slow decline.” 

And finally I asked, “Is this a situation where Carys could deteriorate to a point were she would end up on life support and we’d be confronted with pulling the wires?” 

“Yes,” the doctor said sensitively, “if Carys succumbs to aspergillosis that is a quite likely end.” 

Otherwise, Carys is doing extremely well. Her CPAP respiration is improving and oxygen dependency slowly declining. Carys continues to accept and absorb food through her feeding tube and her brain hemorrhage is dissolving.

Jasper and Sela continue to progress. Jasper’s PDA relapse is clinically gone. Sela’s is now being treated. They are both eating, gaining weight, becoming less oxygen dependent and are currently infection free. Their next milestones include further weight gain, decreased oxygen and CPAP dependency to the point they could switch to a nasal canula after another four weeks.
 

Day 25: Mar 18

As we wrote yesterday, Carys may have a fungal infection in her right lung. The doctors are screening for a fungus called “aspergillus.” I tried to research this fungus on the Internet, typing words such as “aspergillus premature babies” with little luck. Finally, I typed “aspergillus mortality” and then I got the big picture. In a nutshell, this is a very common fungus. One that we encounter everyday. It would bother us if we suffered from asthma. If any of us had AIDS, a major organ transplant, some forms of cancers, or had an otherwise compromised immune system 

(such as an extremely premature baby subjected to heavy doses of antibiotics and suffering from severe respiratory problems) aspergillus would probably kill us.

It’s really hard to say, but studies have mortality rates ranging from 30 – 90%. The doctors have warned us that if Carys has a confirmed case of the aspergillus fungus, and the infection doesn't kill her, the side effects from the drug protocol may well! Doctors will only commence the drugs after gaining extra certainty of what they're treating. Best thing is that the whole thing dissolves away... so to that point...

Tomorrow (Friday in Hong Kong) Carys has another chest x-ray to get an update on "the spot." The specific prayer is that "the spot" disappears, is clearly receding, or reveals itself as something else that is non life threatening (like scarring on the lung that could repair itself over time.) 

One way the doctors have described the long-term prognosis for the triplets is through their potential for growth. Because they are so tiny and premature, if they can avoid major issues and complications, they can often outgrow the minor issues and complications. Therefore, as tiny-scarred lungs grow into big lungs, they grow over and out of the scars. (In very bad cases, that would typically happen by the time they're two, sometimes longer.)

Meanwhile, praise for... stability with Jasper and Sela; Carys' brain hemorrhage seems to be receding; Carys made it to CPAP; Jasper is off all antibiotics and on drugs to fix his PDA and all three of them are eating and gaining weight. And on a lighter note, yesterday while Tess and a NICU nurse changed Jasper’s nappy, the little rascal fountained all over everywhere. Yup, I can hear Grandpa Blake laughing all the way from Yellowknife, “That’s my boy!”
 

Day 24: Mar 17

Tess' engagement ring, our wedding bands and The Terrific Trio.

Carys graduates to CPAP... may have life threatening fungus infection in her right lung.

Today Carys graduated to CPAP. We envisioned this day would be one of joy and a wonderful birthday present for Tess. Unfortunately, our joy was immediately extinguished when doctors 9reported a spot on Carys’ right lung, discovered after a chest x-ray. 

Doctors suspect the spot is a fungus infection - a result of powerful antibiotics that kill both bad and good bacteria - and unquestionably life threatening. The lab is attempting to culture the fungus, over the next two to five days, to confirm if Carys has this fungus. 

If she does, we’ve been advised Carys will be in big, big trouble. Once again, please pray for Carys. Jasper and Sela status quo.

If you'd like, please post an inspiring birthday wish for Tess on the message board.

Day 23: Mar 16
Once again, all systems status quo, except for Carys. Carys' respiration, and general well being, is unstable. Folks, Carys is really unwell and that's just about all we can say - please pray for Carys.
March 17 is Tess' birthday, but things are just a little too foggy right now for a proper celebration.  Apart from a quiet celebration put on by some of Tess' friends at lunch, Tess' birthday has been officially postponed to July 27th (Charles' birthday) at which point we'll hopefully have a major humdinger.  If you'd like, please post an inspiring birthday wish for Tess on the message board. Once this whole ordeal has passed, we'll be printing the web site and message board, and using it as leverage when the Terrific Trio give us grief during the terrible twos, thunderous threes, fearsome fours, or truculent teenage years.  Yes, click now and your birthday message can be committed to history! (After writing your message, you will be prompted to confirm/click again to post your message.)
Day 22: Mar 15
Terrific Trio celebrate three week birthday.

Jasper and Sela generally status quo. Carys had a "settled" afternoon (according to the nurses) but otherwise very restless. Tonight she was contorting her head in such a way to pop out the respirator. 

Of course, this method of extubation doesn't work. Carys needs to use her hands, like Jasper, but NICU staff restrained her.  Everytime she tried this trick, Carys would De-Sat (stop breathing so that her O2 saturation drops below 80 (97 - 100 is ideal and what you and I normally operate at without the oxygen enriched air, which of course Carys needs.) We're taking this restlessness as a sign Carys is ready to graduate to CPAP but folks, don't get encouraged, the way we were with Jasper's self-extubation, by the above cuteness and humour.  Carys is still very, very ill. As my father, a physician, used to coach me anytime I was taught first aid or calling in for medical advice, "Well forget about the symptoms for a moment, how does the patient look - how is their overall constitution?" The answer is: terrible. This poor little baby is emaciated, sickly looking, has terrible colour, is obviously very restless and in tremendous discomfort despite the excellent NICU care. Friends and family we pray for an immediate miracle in Carys' well being.  It dawned on me the last few weeks that one of my spiritual gifts might be healing, therefore, I spent almost my entire visit tonight at Carys' side - praying, consoling and ushering her out of her de-sats. (And gave her dessert.) Moreover, I reached out and called upon God, "Heal this baby, Lord, heal this baby, now." Our Hong Kong friends might be interested to know that Tess has officially started eating the famous Chinese Fish and Papaya Soup to stimulate breast milk production. Despite their medical ailments, our triplets are in fact piglets - including Carys. Praise God for that!
Day 21: Mar 14
All systems status quo.
Carys very irritable today. Her respiration progress up and down all day. Her IV collapsed,  causing considerable pain when given her drugs around 7:30 PM. Amazing the grimacing even a poor little preemie baby can make.  But let me tell you - when it comes to pain thresholds, Carys is tough like her mother.
Day 20: Mar 13
Today, the NICU permitted Maureen, the triplets maternal grandmother, to vist. Maureen writes about her visit below, but first a quick medical update. Jasper is generally status quo. Due to the continuing fight against infections the doctors are unable to treat his PDA for at least a few more weeks. 
JASPER MOVIE (4 MB): Maureen holds Jasper's hand. Best viewed with Windows Media Player @ 200% setting.

Jasper yawns before being tucked into bed.
Jasper did better with his sleep apnea today with only a few incidents. Sela, also status quo, has had no bouts of sleep apnea and maintained satisfactory respiration. Carys' pneumonia improving, lung x-rays show less haziness. Carys' colour has improved, but she still looks pale and fragile. Fortunately when prompted, Carys is still active and alert.

SELA MOVIE (4 MB): Charles gives Sela her peppermint treat. Best viewed with Windows Media Player @ 200% setting.


NICU nurses (background) prepare to fortify mom's breastmilk (foreground).
Maureen's Report:
No love story has yet been chronicled that could even come close to how hard I have fallen in love, three times over.   Charles and Tess walked over with me to the NICU and we did all the necessaries, ie:  talking over the intercom and gaining permission to enter the inner sanctum, me filling out a form re. SARS, passing through two security doors, masks on and buzz! we were in.  Down a hall and suddenly they said, "Here we are".  There ahead of us was this airy, non-crowded room with 3 isolettes.  For some reason I did not quite register these were OUR babies until Tess said, "Shall we go in and meet the babies?" and then it hit me.  In we went and immediately Tess took me to the first wee bed and said, "And this is Jasper" and I was smitten.  There was no, nor will there ever be, turning back.  There was this delightful, perfect, little tiny man who looked so wonderful to me.  I was transfixed.  We moved over to Carys and I prepared myself for how 'beaten up' this little morsel would be.  I was so truly shocked.  There lying in her bed was this perfect little person with a somewhat more preemie look to her and she was absolutely beautiful.  I couldn't get over it.  What a marvelous little girl.  And then on to Sela who was having the best sleep and hardly stirred during our entire visit.  She looked so cozy and content and all I could keep saying to Tess was how beautiful they all were. 

Maureen visits with Jasper.
Oh, I had fallen hard.  I had the joy of touching each one - what a privilege.  I prayed with each one - again what a privilege to commit these babes into the safe and loving arms of Jesus where they need never fear.  I listened to each one breathe!  Something we take so for granted but with these three it is just about the best sound you can imagine.  Jasper let out some little cries in his sleep and stretched into amazing contortions.  At one point Charles and I chuckled as Jasper looked like an escapee wanna-be from some jail.  His teensy hand was pressed against the Saran wrap which covers his bed - we could almost hear the "Let me out of hereeeeeeeee!".  The weeny leads on their chests have little kitty cats on them.  What a sweet touch.  Each babe is so well cared for with their every move, breath, heartbeat fed into individual computers.  Their nurses were very kind to us and treated me very gently when I, in my eagerness to touch Jasper, had not used alcohol rub and gloves after washing - a quick intake of breath on the nurse's part alerted me to my mistake and once I did the rub and donned the gloves I was back in the good books once again.

Maureen visits with Sela.
Chuck gave me the Bible to read from and I had a short but lovely time reading to precious Carys.  She quite thrilled me when Tess and I first went over to her bed as she responded to Tess' voice and this miniscule eye opened up.  Jasper did the same for both his parents whilst Sela stirred the least as she was having such a good rest during that particular hour.  They looked adorable with their head gear on.  Both Jasper and Sela were given their tube feedings  - mmmmm, little tummies filling up and giving them such a contented look.  Tess was able to give Jasper his dessert/lollypop and that is the best fun to watch.  Each time the swab was introduced into his mouth his weensy lips went to work and you almost expected him to smack them together in pleasure!  As I gazed at these three miracles I pondered the unimaginable - one day they are going to be monkeys and require discipline!!  Now try and wrap your head around that one!!  Preemie-sized soothers, hospital name tags the size of a man's wedding ring, finger and toe nails the size of..... well, think so small that they almost disappear, eensy head caps on for warmth and to keep all the head gear on... 

Maureen visits with Carys (above) and reads to Carys from the Bible (below).

it was another world and I was enthralled.  Each babe has a cassette recorder and from each bed could be heard soft strains of Mozart.  Listening to Tess and Charles talk to their babies melted my heart - the bond between the children and their parents was precious to behold.  What a wonderful job these two are doing under very difficult circumstances.  I am so grateful for this incredible privilege of having seen my latest three grandchildren - Jasper the man. Sela the beautiful little girl and Carys the utterly wonderful little fighter.  Thank you Lord for these your children. 
Day 19: Mar 12
Again, no real news today. The situation is generally status quo. Sela's breathing is strong, Jasper's the same and he still suffers from sleep apnea. Carys, holding her own, was put back on the regular respirator.
Doctors think they see signs of improvement in her pneumonia. All three still have PDA and the doctors think that Sela's is actually quite bad. Tess, needing some rest, stayed at home for the nightly visit. Charles gave the Trips their dessert, read them stories and said their prayers.  The NICU staff misinformed us that Saturday and Sunday are "Grandparents Day" when the grand's can visit NICU babies one at a time. Maureen waited patiently all week, and tonight we found out this practise discontinued post-SARS... "strict hospital policy," the nurses said.   "Well then YOU call my mother-in-law to tell her she can't come tomorrow," Charles replied as calmly as he could. Recognizing that a doctor and nurse already made a promise, and that Maureen came all the way from Canada, the NICU staff are going to try to pull some strings.
Day 18: Mar 11
No real news today. The situation is generally status quo. I guess it is a good thing that Carys is holding her own but we sure wish we could see some sort of improvement. The high frequency ventilator is easier on her lungs and she is able to maintain very strong and consistent oxygen saturation levels. However, Carys is still completely 100% dependent on the machines to breathe. Carys also looks as though she has lost quite a bit of weight… when we queried about her weight, the nurses dodged the question, “Well, Carys is not gaining weight yet.” On a somewhat positive note, Jasper’s and Sela’s post birth weights are stable. As everyone knows, babies always lose a little weight post birth, and the doctors warned us not to expect our preemies to increase their weight for two to three weeks. Jasper and Sela seem to have hit the bottom of the trough. 

Tess gives Jasper a tasty dessert!

Sela is on her way back up and Jasper is 30 grams above his birth weight. The nurses also think Jasper’s sleep apnea is a result of him being lazy – so Dad’s thinking, “Lazy = weight gain. I’ll take it.” But Mom is thinking, “Lazy = a messy incubator. Clean it up buddy and start breathing, too.” Either way, we’re happy that Jasper and Sela’s weight seem to be going in the right direction. Sela’s food intake has also been increased slightly. Reportedly, both she and Jasper take 7 mls of Tess’ breast milk eighteen times per day. Fortunately, Tess produces more than required, and we’re able to freeze about 150 mls per day for future use.


Sela on CPAP - normally happier!

Due to the heavy load of antibiotics – the drugs kill bad bacteria along with good bacteria – all three receive a tasty peppermint flavoured oral salve designed to fight any potential fungus problems like Carys’ skin yeast infection. The mustard coloured drug is injected into the end of the sterile syringe package, and a baby pole-vault sized cotton swab used to administer the drug. Charles calls it a “Lolly Pop,” the nurses call it “dessert.” Either way, the Trips like it. Carys takes it slowly, but after recognizing the succulent blend, opens her mouth wide like a little baby bird looking for a fresh worm.


Carys continues to fight!

The last few nights the nurses asked Tess and me if we’d give the trips their dessert. “Of course!” we exclaimed. Tonight, upon arriving at the NICU, the nurses took it one step further and said, “We waited so the two of you could give them their dessert.” Our hearts melted. Tess looked after Sela and Jasper while Charles made sure Carys finished her dessert down to the last drop. As we said “good night” the nurses had just suctioned off Carys’ lungs and she was wide awake. Her tiny little eyes opened and looked longingly around as if trying to say, “I want to go home.” Someday you will, Carys, someday you will.

Day 17: Mar 10 Sela graduates to CPAP! Carys still lost in the  Hundred Acre Wood, shifts to high frequency ventilator, overall condition the same: poor.
Day 16: Mar 9
Friends and family, Carys is in trouble. Not that her triplet siblings don’t have enough problems of their own, but Carys is truly being tested. First, Carys is battling pneumonia. X-rays show her lungs are still quite cloudy. At the best of times, even the adults don’t want that. Second, Carys’ lungs are filling with fluid, requiring the NICU staff to regularly suction off her tender little air sacs. Third, the PDA (heart valve) problem is exacerbating the fluid problem in her lungs. As a result the doctors are concerned about fluid retention and have reduced her breast milk intake. Instead they are giving her a lesser amount of vitamin and nutrient enhanced breast milk. Fourth, Carys oxygen settings are extremely high – as high as 70%. 

Continuing at that rate doctors will switch Carys to a heavy-duty respirator. Fifth, Carys is battling a variety of infections, the most recent one being some form of skin yeast infection. Sixth, the previous bacteria identified has not left her body and will take at least two weeks to exit her body completely (if it does) because Carys can only receive low drug dosages due to the stressful side effects of existing drugs placed on her kidneys.

Seventh, Carys is at a point where the doctors are concerned septicemia will set in. This little kidlet just cannot get a break and she needs one badly. Finally, Carys looks ill. Despite being active and occasionally opening her eyes, her skin colour makes Carys look unwell.  (You can get a sense of this from the pictures, particularly in her face.) There is not a lot more that this poor little 1.65 lb girl can possibly take.

Tonight as we left Tess asked one of the nurses, “but Carys is still stable, don’t you think?” The nurse wouldn’t answer and as we left the room the same nurse said to me quietly, “It’s in His hands now,” pointing to the ceiling. 

Meanwhile, Jasper officially has sleep apnea and Sela a Grade 1 brain hemorrhage. I’d write more but I am just too exhausted. 

Day 15: Mar 8
Tonight we received a dose of perspective upon learning that the sick baby admitted yesterday to the QMH NICU passed away Sunday night several hours after we tucked the Terrific Trio into bed. We found out after a friend called because Tess knows the parents. Upon hearing the other half of the poor child’s story we spent the rest of the evening feeling rather numb. 

Tess' hand up against Jasper's small head.

Charles holding Sela's small hand.
Tess’ mother arrived today with two suitcases full of treats, but we postponed treat giving for a day due to the news. We were reminded how precarious a path our own little trio has ahead of them. At the same time we’re so grateful for the progress they’ve made and cautiously optimistic they’ll continue to do well after celebrating their two week birthday with a little Mozart. In general, today was status quo except little Carys has a very big battle ahead of her and right now all of it is a steep uphill climb - unlike her triplet siblings who are breathing quite a bit on their own, Carys is completely respirator dependent. 
Day 14: Mar 7
Today was a gorgeous, cool and sunny day in Hong Kong and a relatively uneventful day for the Terrific Trio. Another very sick baby was admitted to the NICU, into the unit next to ours. We have no idea what is wrong with this baby, but for the entire day this poor child required the attention of the entire senior NICU staff and several doctors. As a result our trips had a thin crew, but today they were on pretty good behavior so it didn’t matter. We sort of got the message that the meningitis scare is behind us, but this will be confirmed tomorrow once the regular doctors return from the weekend. 
Carys settled down considerably today, as did Sela. We even thought both Sela and Carys had better colour. Something we noticed in Jasper last week. Jasper continued to strengthen today, but that also meant he was restless – attempting to pull everything out of him and crying regularly. Tonight Tess and I took turns consoling him by gently but firmly patting his chest or limbs. As we spoke Jasper would open his eyes to look at us as best he could. Absolutely striking how aware he was of our voices.

One of the nurses even confirmed that the babies had a good day. Apparently due to their increased feeding, the doctors will try removing the IV feeding lines tomorrow. We breathed a huge sigh of relief – one less tube could only mean a little more comfort (Jasper may remove all the tubes before they do!) 

– but no sooner had we relaxed when the same nurse pulled us back into reality, “But please remember your babies are still very ill and you have a long, slow road ahead of you.” Thanks a lot! We know we have to be careful not to get a false sense of confidence but after the last few rocky days we are grateful for some better news. For two weeks now we’ve been subscribing to the “Hydraulic Model of Coping” so a positive day helped us de-pressurize and also realise how completely exhausted we feel. All three of us attended church today where we found, as always, an overwhelming amount of love and support from the Union Church community. Clinging to our little bit of good news, Tess, Charles & Sebastian grabbed a drink at Starbucks (Seb had his first Starbucks drink – a Babycino!) then took a lovely, late afternoon drive around Hong Kong Island in the “7-seater Renault.”  Charles has officially weaned himself off the BMW as a defiant statement that the big Renault is required for the new big family. The BMW will be shipped to a new life in Australia in the next few days. Finally, tonight we started the Mozart Therapy. Studies show that the impact of Mozart, and other soft classical music, provides such a positive impact on premature babies that doctors are “unable to clinically explain” the results. Last week during an NICU briefing session a nurse suggested we provide classical music for the Terrific Trio. Many thanks to Lisa Kemp in the UK for reinforcing the importance of Mozart Therapy – tonight the music started and we have to admit… Charles didn’t think the last two weeks could be more surreal until he heard beautiful Mozart ever so lightly drifting through the NICU. "Behold, I show you a mystery; we shall not all sleep, but we shall all be changed, in a moment, in a twinkling of an eye . . ." -- Corinthians 15:51
Day 13: Mar 6
Saturday was a very difficult day for Carys. To combat her various ailments, the doctors administered some very powerful 
drugs, the side effects of which made her twitch quite extensively. To calm her down, a sedative was given resulting in her blood pressure dropping. Doctors conducted a brain ultrasound to see if the twitching was the Grade 2 Brain Hemorrhage progressing.   Negative - Grade 2 Brain Bleed status quo. The sedative was discontinued and by the evening Carys seemed much calmer. Today Dad was able to touch him for the first time (Jasper was lying on his tummy so Dad firmly  stroked and massaged his upper back with two fingers) and we also heard Jasper's little cry for the first time. To summarize, both Carys and Sela are in precarious condition, particularly Carys. Jasper is doing okay on his CPAP.
Day 12: Mar 5
Taking his older bother Seb’s lead to excel, today Jasper graduated to a CPAP. The poor little guy looks like a SCUBA diver. However, the CPAP is a major milestone and already we can see that Jasper is much more comfortable than when incubated. Jasper’s PDA is back, and he is fighting a variety of infections, so the doctors will leave the PDA for future attention.

Today a strange scare bolted through the NICU as doctors identified a rare type of infection in all three babies. The infection is from the flavivirus family and they have no idea of the source other than the fact all our babies are carriers. Don’t know the flaviviruses?  Think of Yellow Fever, West Nile, Japanese Encephalitis, septicemia and meningitis


 to name a few of its offspring. Not your friendly next-door neighbours and has a high fatality rate, if it takes hold in the form of meningitis or septicemia, in premature and newborn infants. Yikes! Moreover, doctors suspect both Sela and Carys may have meningitis. Mid afternoon we received an urgent call from the NICU to rush into the hospital. Upon arriving the doctors informed us that Sela required a spinal tap to rule out meningitis. If Carys' condition worsens, she will require a spinal tap, too. 

Plus, Carys officially has pneumonia for which she’s been prescribed a round of antibiotics. All three babies are receiving antibiotics for their previous infections, and for the reported flavivirus. 

When we returned to the NICU for our nightly visit, the doctor informed us of  the spinal tap’s preliminary results – meningitis is unlikely but cannot be ruled out for two more days until the lab attempts to culture a virus. 


Tess noticed an eerie sense of spaciousness in our room – the Terrific Trios’ slightly older roommate had moved to another ward, and nurses stepped up infection control procedures. The doctors explained what this meant to us – two levels of hand washing on the way in, one level of hand washing on the way out. Masks are standard. We pray the virus scare will amount to nothing, in which case Jasper’s CPAP status and all three babies’ strong feeding are encouraging gestures from God during a time of struggle. 
Day 11: Mar 4
In January, on Sebastian’s first day at Libby’s Play Group, Seb was a nightmare. He hated every moment and just would not do as he was told. On his second day, while the other children learned how to wash dolls, Sebastian jumped into the bath clothes and all! Disheartened, we were sure Sebastian would be expelled from Libby’s Playgroup. Today Sebastian came home from Libbys’ with a stellar report card and an award to boot for “Good manners & always smiling!” Our triplet dampened spirits were so lifted.
All I could think of was the day when the little triplets would waltz off to Libby’s, sanctimoniously bringing home their own glowing awards. How we yearn for that day. Today, however, Jasper, Sela and Carys had a tough day in the hood, once again plagued by a string of small but building issues. Jasper’s PDA re-surfaced and new, potentially harmful infections reared their heads in all three babes. Breathing across the board suffered. The doctors claim Sela already displays classic symptoms of chronic lung disease – normally not diagnosed until the equivalent of 34 weeks gestation.  Praise God Tess ate so well when she was pregnant and set a trend that the trips desire to continue. On the brighter side, tonight Pastor David Marriott and his wife Linda,  visited our struggling kidlets. David and Linda spoke eloquently and powerfully, summoning the power of The Lord to heal and protect the triplets. Tess and I were deeply touched and appreciative of David and Linda’s words, love and compassion. Meanwhile the doctors told us the triplets were actually quite active – “yes, very aware of their surroundings,” they optimistically reported. So as we left this evening, we instructed restless Jasper and sleeping Sela and Carys to be at peace, rest, restore yourselves, get well. Yet secretly deep inside we hoped they'd not entirely obey our commands but instead raise havoc in the NICU, hate every moment and corral all the other babies into the bath.

David & Linda Marriott visit Sela with Tess.
Day 10: Mar 3
Another tough day. Too tired to do a major update so here goes… In addition to the Grade 2 Brain Bleed, Carys has an umbilical cord infection that is "not affecting her much." Carys is also fighting a bacterial infection that may require antibiotics. 
She is breathing more on her own, still has a mild PDA and being fed 24 mls/day… a good sign. The doctors said that Carys is "clinically doing quite well." Meanwhile, Jasper's PDA is clinically gone (Praise the Lord!) Respiration has improved so in about two days the doctors will try him on a CPAP. However, he has e-coli in his bloodstream, requiring antibiotics. He also has an elevated white blood cell count and a decreased red blood cell count suggesting he has an additional infection. For this Jasper may require more antibiotics and had to have a blood transfusion. Jasper is accepting 24 ml/day in feeding and according to the doctors "clinically doing quite well." The previous over achiever, Sela, has now burned herself out. On Monday night Sela had frequent saturation declines. X-rays revealed her lungs are "not clear" and this could be the onset of CLD (chronic lung disease) that in its worst state usually lasts until toddler age. Sela has a PDA that is not closing.  Prior to starting any drug protocol the doctors want to consult with a cardiologist tomorrow. Sela also required a blood transfusion due to poor hemoglobin's and required the highest concentration of oxygen enriched air among the three. To be honest, the doctors are a little worried about our little Sela. Errrr... On the bright side, Sela is a little piglet, accepting 36 ml of mom's milk/day. Plus, the nurses told us that our Union Church Pastor could visit on Thursday night to pray for the babies.
Day 9: Mar 2
Today was just too hard. We should have known, with such progress the last few days that eventually we’d walk into the NICU Tango dance studio to find everyone stumbling on the floor. Carys has a Grade 2 Brain Hemorrhage. “A little bit of bleeding,” the very sweet doctor said, who as it turns out, went to the same high school as Charles’ sisters in Toronto.  “But this is very, very common in premature babies and you should not worry too much,” she continued. Easy for her to say! Intellectually we know from our research not to get too excited... but it’s still dreadfully frightening.
We’d prefer no hemorrhage, and it’s one step away from a Grade 3 with Grade 4 being the worst - a one-way street we don't want to go down. Grade 2 typically means everything settles down and in the long run melts away with no repercussions.  "Praise God this is only Grade 2," we thought. Meanwhile, Jasper has an odd looking eye, and I couldn’t figure out if one eye was swollen or the other eye was sunken. Again, we know from our research that Retinopathy of Prematurity (ROP) can be treated with excellent results. Moreover, reportedly your average NICU doctor cannot diagnose ROP – it requires an ophthalmologist experienced in the examination of premature infants. But Dad, oh yeah, he's an expert! So maybe it’s nothing and we just need to manage the fantasies inside our heads. Finally, during tonight’s visit a doctor and several nurses spent an extraordinary amount of time on Sela. I asked the doctor, “Any updates?” He replied, “Noooo.” I queried again, “Everything status quo?” He responded, “Yeees.” Then why as we were leaving did a big, ugly portable x-ray machine roll in to snap a pic of Sela’s lungs, we wondered suspiciously like parents watching their teenage daughter head off on a date. So I asked the doctor who said, “Her saturation was dropping so we plan to take an x-ray to see if there is a problem with her lungs.” (I.e. collapsed or something.) "Just make sure she's back by 9 PM," I growled inside my head. Snapping a quick pic has happened before and previously the x-ray we know of merely resulted in re-positioning the respirator. Chances are, they’ve snapped a few dozen x-rays and we’ve never known. Still, it’s scary. Neither of us wanted to stay – we’re already holding enough anguish so what’s a little more? Instead we came home knowing that a good night’s sleep would be far better for us than hanging around in the waiting room for several hours. 

On the brighter side, the York Mills Collegiate Institute doctor seemed to think that overall the Terrific Trio were doing fairly well. Generally, we’ve seen an improvement in respiration across the board to the point there were plans to try Sela on a CPAP tomorrow. Hopefully the x-ray won’t de-rail those plans and she’ll be up and dancing with Carys and Jasper in no time. We pray that’s what tomorrow brings.

Day 8: Mar 1
The Terrific Trio celebrated their one-week birthday with respiration progress across the board. Sela remains in the lead, displaying a little less dependence on the respirator. Jasper is in second place. 
Carys trails although it was gratifying to see her oxygen mix much lower than a week ago. One thing we have not mentioned, just assumed everyone assumed, is that all the babies have physiological jaundice. However, they have spent lots of time under "the lights" and their colour appears improved.  While the babies continue to resist feeding to a degree, the nurses claim the babes are making some progress. The immediate hurdles are (1) graduating from respirators to CPAP (2) increased feeding (3) jaundice (4) happy brain development - no hemorrhages and (5) infection free.  The daily dance of the NICU Tango is testing, but the weekly progress is easier to see. Meanwhile, Charles returned to work today to find, thanks to his crashed Blackberry, well over one thousand unread e-mails. Fortunately, the Juniper Networks team has been extremely supportive - thanks to the HR Team for the wonderful flowers! 
Day 7: Feb 29
Tess came home from the hospital today after a morning visit to the babies. In the afternoon another wave of reality swept over us and the path ahead just looked so insurmountable. We’ve chosen to place our trust in God and find peace there, along with knowing the babies are receiving outstanding care at the QMH NICU ~ the two are certainly related.
We went back to the NICU for what is turning out to be our nightly ritual, to find oxygen settings the lowest we’d seen in days (a good thing), and oxygen saturation improved across the board. I read the terrific trio bedtime stories and Tess read from a Children’s Bible. We could have asked the nurses more intrusive questions but we knew if we pushed too hard we’d be deferred to doctors. On a Sunday night that would result in waiting and a building paranoia.  The babies looked peaceful and comfortable so we slipped away at the end of visiting hours knowing we could see some respiration progress across the board and that in our absence the terrific trio would be held in the palm of a great hand. 
Day 6: Feb 28
With the exception of an e-coli alert this morning, the Terrific Trio managed to knock-off another uneventful day with only minor issues. This morning, after Tess expressed much needed breast milk for the new babes, we visited our fragile little three. During the visit we basically learned this: “e-coli, Sela, tummy.” Immediately the fantasy machines went to work inside our heads. Intestinal infection in preemies is very dangerous because of the inflammation. One thing Tess and I know about after living in Asia for so many years, are the perils and discomfort of upset and inflamed bowels. For preemies, it’s not the infection so much as the extreme inflammation from an infection.  The doctors were very good about meeting with us to discuss the issue. Apparently while cleaning Sela in the morning, one of the nurses found “something” in her ear (i.e. dirt like) took a swab and sent it to the lab. The lab said, “Warning: that sample has e-coli present.” K10 (the NICU Ward) then checked with K9 (Tess’ Ward): Is e-coli in any of Ms. Lyons’ blood tests or other tests/swabs? Negative. Blood tests also showed no presence of e-coli in Sela. The doctor said this, “Yes we found e-coli. Was there enough to be cultured into thriving bacteria? We don’t know. Is e-coli making its way into Sela’s blood stream? We don’t know other than ‘it’s not there now.’ But as a precaution, we have started all three babies on a course of e-coli killing antibiotics.” 

Where did the e-coli come from? Most likely at birth some form of e-coli was present and made its way onto Sela. Besides, most of us, with well-developed immune systems, are regular carriers of a limited amount of e-coli. The fantasies tamed and shortly thereafter stopped altogether.
What we learned: (1) The NICU staff is incredibly thorough. The fact that a nurse had the presence of mind to send an odd looking piece of dirt to the lab just blew our minds. (2) The communication between K9 and K10 was happening in the background at a very high speed, and it turns out has been all week. (3) Our quest to keep Sebastian away from antibiotics for the first 27 months of his life will not be pursued with the triplets. (4) We need to manage the fantasies inside our head. Here are the more mundane updates:

Last night Jasper was very restless and pulled out his ventilator for the second time. The NICU did not attempt a CPAP but re-ventilated him immediately. They also hand cuffed him, by safety pinning a bandage on his arm to his bed. Dad had to have a little talk with Jasper, “look here little buddy, despite the fact your Grandfather Blake is 

giggling with pride over your truculence, don’t pull out your ventilator again!”  Jasper is fighting some low blood pressure but appears to be pulling it up unassisted. His breathing and saturation was slightly better today. The nurses reported he had a very restful afternoon. 

Sela, despite her apparent propensity to scare the living daylights out of her parents, continued to do well today. Carys’ heart rate was about 10% higher than her NICU siblings, but her breathing a little stronger overall. All three need to make progress with feeding.

Tess received a day pass from K9 for the afternoon. Upon arriving home at about noon, she was greeted by an ecstatic Sebastian who expressed more love for his mother than at any other point in his 27-month life. Spontaneous hugs flowed everywhere. For the first time today I was actually able to be present to some of the joy of these three new babies. Most of the week I have lived in a shadow of doom. But while shopping at the local supermarket, the Park ‘N Shop ladies had already heard of the babies’ birth. How that happened I have no idea. Then, as I left K9 tonight I showed the nurses pictures of the babies and Sebastian. 

Sebastian seems to understand the babies have been born – this week he mastered the word “Baby” and “Babies,” which jump out of his mouth regularly and at the oddest times. He looks at the pictures with mixed reactions, willingly hugging the print outs and digital camera to show his love and concern for his siblings. Occasionally he expresses distress at the tubes by saying, “uh oh,” to which we explain the doctors need to look after the babies for a while before they can come home. 

The last two days I’ve noticed him saying, “bow wow” while pointing to the pictures. As amazing as this may seem, I think he is trying to tell us his little brother and two little sisters need a little dog just like the one he has in his bed. And so, tomorrow Sebastian and I shall have our usual Sunday together and we’ll look for just the right bow-wows for his siblings. Meanwhile, Jasper, Sela and Carys have already told Tess and I to be on the lookout for something special for their older brother. You never know what treasures Sundays can find.

“Be not afraid, just believe.” Mark 5:36.

Day 5: Triplets have another status quo day with no major complications, uneventfully passing the 96 hour post-birth mark.  Sela may have mild PDA along with Jasper. Respiration stable in all three, including Carys, who has managed to maintain her respiration levels. Some resistance to feeding in all three. Mother to stay in hospital for the weekend to be close to babes and continue her recovery.
Day 4:
Major milestones for today:

The triplets passed the 72-hour milestone… next milestone: one week. 

Over 300 Moltex preemie diapers arrive from Australia. Thank you Matt & Denby, the doctors were very impressed! Our babies are so small I was convinced the diapers would still have that “Farmer John” look. But after Jasper & Sela modeled for us I was amazed. The diapers actually fit… and they make the babies look ridiculously cute. 

Several hundred newborn diapers arrive from Andrew Work and Paul Munder. Thank you!

We named the two girls today. The first girl, born second at around 2.1 lbs, is Sela. The second girl is Carys and the littlest of the three. For several weeks we’ve pretty much planned to choose Carys as a name, we just didn’t know which one was Carys once she arrived. Well, Tess and I both accidentally called the second girl “Carys” on Day 3 so we agreed that must be her name.

The NICU doctors and team continue to impress and we are grateful of the care they provide our babies. 

Today was an uneventful day, but let’s face it folks, these tiny little beings all have lung problems. Last night Jasper pulled his respirator out. (I am so proud of him!) The doctors put him on a CPAP (a big step for the little guy) but when his oxygen saturation declined after a few hours… back to the ventilator. At our midday chat with the doctors, they said the PDA was mild and at this point, they were not overly concerned. Jasper also had a routine brain ultrasound. There was no sign of brain hemorrhaging. 

Sela is officially in the lead for overall health. She maintains the best O2 saturation at the lowest mix. However, she did have to have her O2 turned up so she is no longer on the “atmospheric mix.” We’ve been warned by those who have fought this battle before us, and everyone says NIC for preemies is up and down like a roller coaster. 

Carys continues to struggle with her lungs. Fortunately she has held her own with numerous ups and downs. There is still blood in her lungs. The doctors “suction off” every once in a while. This improves her O2 saturation and reduces her O2 dependency. Already Carys is showing her personality. In the womb Tess is quite certain she was the most active, and now in the NICU there Carys lies bare naked (she refuses to wear a diaper) with limbs hanging out all over the place. Carys is a feisty one, and it’s a good thing. She’ll need that resolve to get through this battle with her lungs. 

While we were grateful today was uneventful, I’d secretly hoped for more breathing progress with each of them. Maybe that day will be tomorrow. The babies started receiving small amounts of breast milk.


Tess visited the babies twice today and was a super star. At the end of the day as I read each baby a bedtime story, there was Tess at the next little "being" telling him or her more about their life ahead. Tess even sang them songs (Jesus Loves You) and said little prayers on their behalf. Despite the stress of this extremely delicate situation Tess’ mothering shines through. 

Day 3:
Reality Bites. An Internet friend of Tess’ who has considerable preemie experience, wrote us the other day to forewarn – premature babies tend to have a 24 – 48 hour honeymoon period. Then you find out what is really going on. Meanwhile Tess did better today but only after a few run-ins with the nurses who didn’t seem to appreciate the extraordinary pain and discomfort Tess still feels. However, Tess saw our babies for the first time. Around 5 PM we (friends Dale & Steph came along to provide emotional and spiritual support) wheeled Tess up to the NICU. They stayed in the waiting room and we entered the NICU. As I pushed down the hallway I pointed out our room. Through the door of our unit we went,